Portfolio
DANBIO is the Danish research register for rheumatologic diseases (arthritis, etc.) for monitoring clinical quality and facilitating research at the national, regional, and hospital levels. At present, about 60 000 patients are followed in DANBIO with more than 100 000 patient visits recorded yearly.
SITS (Safe Implementation of Treatments in Stroke) is a non-profit, research-driven, independent international collaboration, with its base at the Karolinska Institute in Sweden.
I GastroBio svarer du på en række spørgsmål om din kroniske tarmbetændelse. Dine svar bliver brugt af lægen og sygeplejersken til at se, hvordan det går med din tarmsygdom og din behandling.
Denne løsning benyttes af sundhedsprofessionelle Hvis du er patient, pårørende eller skolelærer m.v. skal du benytte denne hjemmeside for at besvare spørgeskemaer https://skema.dawba.dk
RAREDIS is a database for rare genetic and often congenital diseases, developed on the basis of the recommendations in the Danish Health and Medicines Authority's report from 2001 and with support from the Nordic Council. RAREDIS has been active since 2007 at the two Centers for Rare Diseases in Denmark.
Dermbio er en velimplementeret landsdækkende database i dansk dermatologi, som leverer data om biologisk behandling (andengenerations immunmodulatoriske behandlingsmidler). Databasens dækningsgrad anses over 95%, dog bemærkes et mindre fald fra 2019-2020. Dette vurderes at være forårsaget af længere besøgsintervaller under COVID-19-pandemien.
This database has been created in order to obtain uniform, longitudinal data over adult and juvenile myositis cases in order to achieve increased knowledge on disease course and prognosis of myositis.
ProQ er et unikt webbaseret kvalitetssikringsprogram. Det er designet til at understøtte optimal kontrol og behandling af patienter med kroniske sygdomme gennem systematisk dataindsamling, integrerede lægefaglige guidelines og inddragelse af patienten.
Built with deep link technology embedding information from sundhed.dk (so automatically updated) Used in Denmark for General Practice doctors
Myositis study Uk where we combine questionnaires and patch (3-dimensional x-y-z tracker) for detecting changes in muscle strengths based on walking style
App for diabetes patients. Web link: https://diaprofil.dk/. Please click here to see the video.
Neuromuscular (myotonia) app Calendar (56 d)for patient tasks Semi anonymous data collecting Built with google sheet schema
