RAREDIS
RAREDIS is a database for rare genetic and often congenital diseases, developed on the basis of the recommendations in the Danish Health and Medicines Authority's report from 2001 and with support from the Nordic Council. RAREDIS has been active since 2007 at the two Centers for Rare Diseases in Denmark.
Raredis Purpose:
RAREDIS is a database for rare genetic and often congenital diseases, developed on the basis of the recommendations in the Danish Health and Medicines Authority's report from 2001 and with support from the Nordic Council. RAREDIS has been active since 2007 at the two Centers for Rare Diseases in Denmark.
Raredis Updates:
RAREDIS has received a technical update. It involves a minor relocation of fields in the diagnosis form, but otherwise has no effect on user interface and functionality. We have implemented OMIM, Orphanet and SSIEM codes updated - as well as getting search options in place.
RAREDIS is prioritized in the highest category of RKKP
RAREDIS has been classified in group 1 (highest priority) by the Regions' Clinical Qualifications Development Program (RKKP), which means that we will receive epidemiological, statistical and data management support from 2020. The priority list from RKKP is available